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Posts: 10

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Published: April 23, 2026 22:56

We received feedback that folks are not so eager to enter a placebo-controlled trial for fear of being in the placebo arm. So, for our trial looking at low-dose rapamycin for #LongCOVID we now have an open-label extension added to the trial so everyone…

Published: April 5, 2026 15:47

We just lost an absolute legend in the field of neuro-restoration. V. Reggie Edgerton was a true innovator and fierce driver of change for people with paralysis. I never stopped being in awe of how far he would go to help just one person. Rest easy,…

Published: April 5, 2026 12:05

As usual, @julierehmeyer manages to capture things so beautifully here as she reflects on the loss of her dear friend with #MECFS. The feelings and thoughts so perfectly expressed in this piece by Julie are familiar to so many in the community: so many …

Published: March 30, 2026 21:08

Great piece from @thesicktimes about our participation in some #LongCOVID and infection-associated chronic condition and illness education in Santa Barbara. Great coverage of some of the challenges of CME-accredited education as well as the need for …

Published: March 30, 2026 15:52

What an incredible community! Thank you everyone for your interest in our trials for #LongCOVID, #MECFS and chronic #lyme. Our coordinators returned to work today with full inboxes from interest in our decentralized trials. So much gratitude for you all.…

Published: March 28, 2026 13:24

I don’t say this nearly enough on here, but I’m so grateful for my team. They’re some of the hardest working, brilliant folks on the planet. Whether they’re pushing the needle on first-in-human #BCI tech, helping folks with diagnoses like #LongCOVID,…

Published: March 27, 2026 21:29

New publication out now! 📣 Audiovisual entrainment therapy significantly improved chronic neuropathic pain in this double-blind, placebo-controlled RCT! Exciting to see that both pain AND pain medication use decreased in the active treatment arm. …

Published: March 26, 2026 15:02

Excited to finally get this one out in @Nature_NPJ! In the largest study of its kind to date, we used data from the @visible_health platform to answer a simple question: can we predict symptom fluctuations and crashes from both the physiological and …

Published: March 24, 2026 19:32

Excited to get this out in preprint: triple-blind, placebo-controlled microtesla magnetic therapy (MMT) is safe, feasible and effective in reducing cognitive impairment in people with #LongCOVID. I get excited about interventions for cognitive symptoms …

Published: March 14, 2026 02:42

Proud to have worked with the brilliant @drmfreire on this new study looking into spike protein in #LongCOVID. The most important part of this study that doesn't just look for spike protein in folks with LC and healthy controls, but it also uses a…